Where does your money go?
My name is Robert and I had the Nuss Procedure at age 23 while in medical school. Before that I experienced many years of misinformation and physician indecisiveness about my pectus. I believe that an overwhelming lack of medical research is the root of most problems surrounding pectus for both patients and caretakers. My dream is that in the next few decades we advance our understanding of pectus. I want to support efforts to identify the underlying cause of pectus as well as treatments that involve much less suffering.
This will require funding sources and significant research progress.
For that reason, I created this website in 2019. I am working to build a team to run a foundation with the long-term goal of developing large fundraising campaigns to fund research projects at hospitals and universities. Because this organization is just getting started, your money will be used to pay for website maintenance fees and will be placed towards a growing fund to establish this organization as a non-profit organization.
We have only raised about $150 so far. This website costs approximately $500 to maintain per year and to establish a non-profit we will need approximately $2500.
On behalf of all patients with Pectus, thank you. Questions?